On Saturday morning I saw the optometrist and she was extremely diligent and tested my eyes and photographed my retina but could find nothing wrong. She then arranged to have a 3D scan performed to see if the damage was below the retinal surface, but that too was inconclusive. We both agreed that whatever had happened to my eye, it was not deteriorating, so she arranged an appointment at the hospital at 10am on Monday, but warned me to go to A&E if the condition changed over the weekend.
On Monday I spent the day having the same tests again and was given a thorough examination by a young doctor. She too was unable to identify the problem either by direct examination or from the results of any of the scans. She called in the consultant and he spotted a small hint on one of the scans and sent me off for a dye test. This test involves the injection of a yellow dye (fluoroscein) into the veins so that it will travel through your whole body; any disturbed or exposed blood vessels in the retina will give off a strong glow. I was warned that the dye would give me the appearance of a Homer Simpson, but it didn't give me more than a mild tan, though it did turn my urine a spectacular fluorescent yellow.
The dye-test showed the problem - I had a macular edema. The macula is the part of the eye that is most densely covered in receptors and it is what we rely on for detail in the centre of our vision. We rely on it for reading and perceiving fine detail in facial recognition. Edema means swelling - in my case a membrane at the back of my retina had ruptured causing liquid to enter an area just below the retinal surface. The consequence of this is that receptors in my eye have been re-arranged and possibly damaged.
The consultant explained all this to me and to be honest I was not at all alarmed. I already knew that my retina was damaged and, if anything, was reassured to have the details of it recognised and explained to me by an expert. I guessed that the damage was permanent but also guessed that, in time, my brain would be able to cope with this disruption, perhaps even learn the new locations of the remaining and undamaged receptors. The consultant confirmed this to me. He also assured me that there was a viable treatment that could prevent further deterioration, though this involved a series of injections into the eyeball and that the eye would need close attention for years to come.
|An idea of the view through my left eye if I'm looking at the word "just".|
|What I see when I blink, with added starship.|
I can live with this level of distortion, but I do fear it deteriorating and spreading to cloud my entire vision in that eye. If, as is possible, a problem develops with my right eye then my visual acuity could deteriorate to the point where I can no longer read, but I won't go completely blind. Although the cause is different, the effects are not unlike the macular degeneration experienced in older people. I have to face up to the fact that significant loss of my eyesight is likely to occur as I age and that what some people face in their late seventies or eighties has started (just) before I reach 40.
This prospect is causing me some anxiety and I can feel a black cloud hovering behind me, dampening my ambitions and tempting me to retreat, dwell and introspect. To give into that leads to depression, so my aim is to reaffirm my ambitions and keep going regardless. I will take the treatment on offer, I will have faith that although my eyesight is failing, that it will do so in a stable way and that, at least for now, my brain can adapt. And, if things get so bad that brain cannot compensate then I will turn to computers and technology for help and rely more on my ears, for example by using audio books. But at the same time I must acknowledge this new limitation.
I feel fortunate that my interests are varied enough that the limitation will not dampen my enthusiasm for life. I am even more fortunate that I have a loving and supportive family around me and some very good friends. In fact, it has already occurred to me that limitation is not always a bad thing - I am prone to trying to do too much at once and so frustrate my ambitions in any one endeavour. Also, wherever I go, and wherever I look, I am now always accompanied by a colourful little amoeba-like flower when I blink, and, for reasons I don't quite understand myself, I actually feel some affection for the little thing.
Here's hoping for the best and that the eyeball injections, which sounds horrendous, do prevent any further deterioration.ReplyDelete